My baby at Christmas

From the beginning

Well since I am starting this kinda late in the game let me get you all up to speed. When I was pregnant with Scott I got very ill and was diagnosed with severe preeclampsia and HELLP Syndrome. These two illnesses can both be very serious and are life threatening. I was induced at 32 weeks due to the severity of both diseases and to avoid me having seizures and strokes while pregnant. Scott was in the NICU at MetroHealth Medical Center which is a level 1 trauma center for 46 days. I had to be delivered at a level 1 due to the complications I was having because other hospitals wouldn't have the tecnology to deliver me. The most difficult thing was not being able to drive for 6 weeks because I was still at risk for seizures and strokes from the PE and HELLP and since Scott was in the NICU I had to have someone else drive me to the hospital every time I wanted to see my dear son. It was very hard not to be able to just go to see my son whenever I wanted and having to rely on other people to be able to go see him. Finally the same day as my 6 weeks check up Scott came home and this was the happiest day of my life. I finally had my angel home. Scott had many obstacles he had overcame and I was so proud. He came off the ventilator after only 1 day. He went from a nasal canula to a CPAP and back to a nasal canula. He was on a feeding tube for what seemed like forever though because he didn't do to well with the eating it was too tiring for him. He was unfortunately still dealing with a reflux problem and trying to find out which formula would be best for him due to his allergy to milk and soy both though. So anyways, Scott came home on an apnea monitor which he was on until April. After coming off the monitor everything seemed great. When Scott was 5 months old we found out that what we thought was an undescended testicle ended up being a right inguinal hernia. So Scott had surgery to fix this problem in the beginning of June. Everything since has been fine. The only thing Scott was still battling was his slow weight gain. We had him on a 24 calorie per ounce diet with the formula versus a 20 calorie per ounce diet and we were feeding him whenever he acted hungry. He has been getting 40 or more ounces of formula a day. Well unfortunately we got some really bad news at his 12 month check up. Scott had only gained 10 ounces in 2 months. He was gaining atleast a pound a month so this is a huge drop for him. We are now being referred to a geneticist, endocrinologist, and a metabolist to find out if there is anything wrong with Scott genetically, or if he has a thyroid problem or an overactive metabolism. I am asking anyone and everyone to please pray for my little boy to not have any major problems. I am hoping it is something simple such as an overactive metabolism because that is something that can easily be treated. Thanks for all your help and support!!!!