Well I'm pretty sure I have not updated this yet since Scott's last big news. On Friday June 19th Mr. Scott decided he was going to give his daddy a little early fathers day present and start walking!! I couldn't be more proud of him. Looking back at everything he has accomplished and all he has been through I am so proud of him. He couldn't be more perfect in my eyes. Just to think that he has gone from being this tiny little baby inside a clear box who I could only touch and dream about holding to being this amazing smart and perfect little person. He has been through so much and accomplished so much it is just so rewarding to think I helped him through all of that. I helped teach him and support him and now he's just getting so big!! I can't believe it he's walking and talking and playing and when we are just at home and he's doing his thing and playing with his puppies or toys or whatever he feels like doing he looks so big and he is just like any other 1 1/2 year old boy. He is so amazing. The only hard time is when we take him somewhere or when we see someone we know with a baby it's so hard because they are always oh he's still so small and oh he's so tiny and it's like what do you mean he's huge!!? I don't see him as any different so why can't everyone else?? He's perfect. So what if he doesn't have the chubbiest cheeks or if he's not the tallest kid he's my little guy and he's just doing what he does best. He's just being Scott.
Even doctors say they want my son to be bigger for his gestational age. They want him to gain more weight and grow more. Well Scott is not going to be like all the other kids because he isn't all the other kids. Endocrinology told us that his bone age is that of a newborn and it is very severely delayed. This is not necessarily a bad thing because they said that it just means that he will have a longer period of time to grow and after most kids stop growing he will keep growing. I was very upset about this until it was explained to me like that. Pretty much Scott is just going to be a late bloomer. That's fine with me.
We went to go see gastroenterology on Monday. They weighed Scott and examined him. Asked us a million and one questions both the doctor and the nutritionist. They tested Scott's body fat and looked at a few other things and they said he just needs more time. He is perfectly fine. He gets plenty of calories and nutrition, he eats, and since he did just start walking it is normal for his weight to drop off a little bit since he will be burning more calories. Scott did only gain 3 ounces in the past month but again he did just start walking. I brought up the fact that his feeding and nutrition clinic had mentioned that they wanted to starting thinking about a feeding tube and he said absolutely not. He sees no reason for it since Scott is eating and drinking and getting all the nutrients and calories he needs. Boy was I relieved!! I think so far this is the best appointment we have had. We found out the test for Celiac's Disease came back totally normal so he is NOT allergic to gluten wheat and rye which makes my life easier. Also, I think this is the first appointment that Scott has had that he does not need to go for any tests, x rays, or procedures!!! Plus the nutritionist was so amazing as to give us a ton of recipes for cookies and such. So awesome of her!!!
As for the rest of us, I am still on the job hunt it's going alone slow as you all would expect. Brandon is doing good with his job at the airport and that pretty much covers us all. Well I think since both the boys (daddy and baby) are napping I am going to enjoy this quiet time for myself and relax for a bit. Thanks for always keeping us in your prayers and God Bless!!
Wednesday, July 1, 2009
This really touched my heart
How Preemie Moms Are Chosen (Adapted from Erma Bombeck)
Did you ever wonder how the mothers of premature babies are chosen?
Somehow,
I visualize God hovering over Earth, selecting his instruments for
propagation with great care and deliberation. As he observes, he
instructs his angels to take notes in a giant ledger. "Beth Armstrong,
son. Patron Saint, Matthew. Marjorie Forrest, daughter. Patron Saint,
Celia. Carrie Rutledge, twins. Patron Saint... give her Gerard. He's
used to profanity." Finally, he passes a name to an angel and smiles. "Give her a preemie."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a premature baby a mother who knows no laughter? That would be cruel."
"But does she have the patience?" asks the angel.
"I don't want her to have too much patience, or she'll drown in a sea of self-pity and despair. Once the shock and resentment wear off, she'll handle it. I watched her today. She has that sense of self and independence so rare and so necessary in a mother. You see, the child I'm going to give her has a world of its own. She has to make it live in her world, and that's not going to be easy."
"But Lord, I don't think she even believes in you."
God smiles. "No matter, I can fix that. This one is perfect. She has just the right amount of selfishness."
The angel gasps, "Selfishness?! Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she will never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't know it yet, but she is to be envied. She will never take for granted a spoken word. She will never consider a step ordinary. When her child says 'mama' for the first time, she will be witness to a miracle and know it. I will permit her to see clearly the things I see – ignorance, cruelty, prejudice – and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her Patron Saint?" asks the angel, his pen poised in the air.
God smiles. "A mirror will suffice."
Did you ever wonder how the mothers of premature babies are chosen?
Somehow,
I visualize God hovering over Earth, selecting his instruments for
propagation with great care and deliberation. As he observes, he
instructs his angels to take notes in a giant ledger. "Beth Armstrong,
son. Patron Saint, Matthew. Marjorie Forrest, daughter. Patron Saint,
Celia. Carrie Rutledge, twins. Patron Saint... give her Gerard. He's
used to profanity." Finally, he passes a name to an angel and smiles. "Give her a preemie."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a premature baby a mother who knows no laughter? That would be cruel."
"But does she have the patience?" asks the angel.
"I don't want her to have too much patience, or she'll drown in a sea of self-pity and despair. Once the shock and resentment wear off, she'll handle it. I watched her today. She has that sense of self and independence so rare and so necessary in a mother. You see, the child I'm going to give her has a world of its own. She has to make it live in her world, and that's not going to be easy."
"But Lord, I don't think she even believes in you."
God smiles. "No matter, I can fix that. This one is perfect. She has just the right amount of selfishness."
The angel gasps, "Selfishness?! Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she will never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't know it yet, but she is to be envied. She will never take for granted a spoken word. She will never consider a step ordinary. When her child says 'mama' for the first time, she will be witness to a miracle and know it. I will permit her to see clearly the things I see – ignorance, cruelty, prejudice – and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her Patron Saint?" asks the angel, his pen poised in the air.
God smiles. "A mirror will suffice."
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