Good News/ Crazy News

Well before I get to the crazy stuff, I would like to say that we do have good news and crazy news. We have found out that for Scott's age he is advanced in problem solving. He is doing things that he should not be doing for a few months still and is showing he is very intelligent. Scott knows how to figure things out so he can do what he wants to do without my or Brandon's help. For example; Scott LOVES to play with his walking toys. He will push them all around the house and use his walking toys to get to places and things that he wants to play with since he still is not walking alone without holding on to someone or something or cruising. If Scott hits what I call a "road block" he will go to the front of the walking toy push it backwards and turn it and go back behind it and start pushing it so that he can continue on his little adventure to get into whatever he is going after. I was very excited to find out that this is advanced as it does get old hearing about what he is behind in. I love my son very dearly it's just frustrating that doctors won't just let him be himself they want him to be like every other child out there and that is just not how Scott is. So that is my good, well awesome news.

Now for the crazy news. We took Scott to see an allergist because they wanted to be sure that since he is so sensitive to milk and soy that there isn't any other foods that Scott is allergic to because we do not want him having a serious reaction. Well they tested him for a total of 17 different things including a few indoor allergens and it was a total of 19 scratches on his back since they needed to know a positive and negative reaction and how it would look on his specific test. Well it came back that unfortunately Scott is allergic to Milk, Soy, Eggs, Nuts, Fish, and Shellfish. Also as far as the indoor allergies go Scott is also allergic to dust and dogs. Since we have two dogs I was very nervous that we would need to find a new home for the dogs. Well good news is that it is a very mild reaction and as long as we keep up with vacuuming and keeping the dogs very well groomed and also get a HEPA air filter for both Scott's room and the main living room area we should be fine. The only downside is that these filters are not cheap so getting them right away is out of the question so we are saving for them and should be able to get them in the next few weeks. Also they suggested keeping the number of stuffed animals in Scott's room down to a minimum since these too collect dust mites which grow off of dead skin cells. So we are in the process of packing up a lot of Scott's stuffed animals since he has like a million of them and keeping them in vacuum sealed bags so they will stay nice and we can show Scott all of the little buddies people bought him while he was in the NICU to help him get better and stronger for when he came home with us. Lastly the doctor suggested keeping the dogs out of Scott's room to keep the pet dander down but since we have already taught them not to go in Scott's room since we moved here that was easy enough for us.

So now the adventurous part that everyone can help in. We are trying to put together a special cook book for foods for Scott. It can be any kind of food whether it is something that he will eat now or something he can eat once he gets a little bit older we are trying to collect some dairy free, soy, free, egg free, nut free, fish and shellfish free recipes. If you have any recipes for us please e-mail them to me at hollypalmer1@aol.com with your name and where you are from and we will put them in Scott's cookbook and show him how many people have helped us and supported us through everything. It will be greatly appreciated and I think it would be nice to show him when he gets older how many people care about him and helped us all out.

I also do have a special request this time. I follow a blog for a little girl who is only 10 months old and has been through so much. Her name is Kayleigh Anne Freeman. I have mentioned her and her family before in previous posts I do believe but I really am asking for some help this time around. This poor little girl had a few surgical procedures done recently so that she could finally go home to her family from the NICU after being there for 10 months. Unfortunately something went terribly wrong during the procedure and she is now brain dead. I am asking for you all to read her blog and her story and please just keep her in your prayers. This family is not only going through this terrible tragedy with their daughter but they have already lost one of their cars and are facing foreclosure and losing their second car which gets them to the hospital to see their sweet angel. They have to other children at home and are struggling to keep their realty business their health insurance and everything up so they still have some kind of income in this time of economical crisis. Please help pray for this family and if at all possible even just $5 will help if you can donate to this amazing family. They are some of the strongest people I have ever met and are just plain amazing. Please at least just keep this little miracle from God in your prayers!! You can check our the story here of this little girl who was born at just 28 weeks and doctors said she would never even make it this far but now she is 10 months old and fighting for her life. Please pray for this family!! http://www.kayleighannefreeman.blogspot.com/

Thanks again and God Bless

Holly

Finally some results

We finally heard from the geneticist yesterday that two of three of Scott's tests came back normal. Well the one that tells us about his size was not able to be analyzed because he was actually too young to have that test done. The test to make sure all his chromosomes were ok came back normal. We are now waiting for one other test to come back and we should know those results in the next two weeks hopefully. Scott is getting the hang of walking pretty quickly. He holds on to anything and everything and has learned how to get around pretty good. He likes to push his tractor around the house and use it as his little car. It's so funny watching him walk because he still is pretty small. Scott is starting to eat a lot more table foods and hopefully that will help with the weight gain and growth issues. Last time Scott was measured he was 15 lbs. and 26 1/4 inchess tall. Still pretty small but I'll take it. We are right now trying to find a really good recipe for a milk free soy free ice cream and we do not have an ice cream maker so if anyone has a good recipe feel free to share and hopefully sometimes we can give Scott a yummy treat. Well take care and sorry I don't get to update too often it's been really busy lately!! God Bless

Good News

Well sorry it has taken so long to update this but I have been really busy with work. Recently Scott gained a pound and a half in the past two months!! This is really great for him as he was only gaining an average of half a pound a month!! He is doing a lot better with his oral texture sensitivity and is eating a lot more table food. Also they decided since Scott is over a year old he no longer needs to be on an infant formula but due to his milk and soy allergies he is on a one year and older formula which is hypoallergenic and is prescription only. It is called Elecare and it is great because it is 30 calories per ounce which I'm sure is also helping with the weight gain. We are still waiting to hear back from his genetics testing but I guess no news is good news right?? Scott is due to see an allergist on April 21st. It sounds so far away but it is the soonest appointment we could get when I will be able to make it with my crazy work schedule. Brandon finally got a good full time job after being laid off four times so things around the house are getting a lot better too. Not quite as stressful although we are still trying to get caught up with a few things. Well I hope this weight gain keeps up as Scott seems to be doing so well right now. All we have to hope for is that his fine motor skills keep improving. He is doing better with the eating it is just the small things like the pincher grip and stuff like that that we have to work on. He still wants to grab everything with his fist instead of using his thumb and first finger. Well hope everyone has a good week and I will try to update you all sooner!! God Bless

Good News

Well Scott had his feeding and nutrition appointment today and since january 9th he has gained almost a pound and a half if the scale is correct!! That takes him up to 14 lbs. 2.5 oz.!!!! They referred us to a new formula and some tips to get him to eat better and help with digestion. He will be seeing an allergist and the feeding and nutrition clinic will talk with his primary doc to see if a gastroenterologist will be necessary since he should be gaining a lot more and a lot quicker considering the amount of calories he gets a day. Well that is my update and good news. I will update whenever i get any results back from genetics!! Thanks for the support and keep the prayers coming they are obviously working!!!!

Virtual Baby Shower

Go to for the best virtual baby shower ever. You can also donate to two very amazing babies who really need our help. This is an amazing cause and everyone should defintely check it out!!!!


Thanks

Holly

Geneticist

Well we had Scott's genetics appointment. Everything went well. She took some measurements like the trunk to crown and she measured his finger for some reason. They said it could take up to 5 weeks to get all the tests back. They did tell us though that if anything comes back abnormal they will notify us immediately otherwise no news is good news and we will just have to wait it out. Well sorry it took so long to post this. His appointment was the 3rd and I am just now posting but I have been super busy and Scott has been a handful lately. Everything else is going ok. Well just please keep us in your prayers and hope they figure out what is going on and hope it is nothing too bad. Well thanks for all your support and prayers. They are much needed and much appreciated.

My baby at Christmas